Prof. Murray and Out of the Blue Big Band raise over £600!

 |  All News  |  Fundraising  |  Supporters

ootb-town-hallProf. Murray and the  Out of the Blue Big Band raised over £600 on Saturday November 19th 2016 in aid of Olivia’s Vision.

A huge and enthusiastic audience were treated to 2 great sets by the band and their amazing vocalist, Jan Harris.

Many thanks to everyone who helped to make the night such a success… and if you missed the gig, there’s still time to donate!

 

Live in America? Got Macular oedema?

 |  All News  |  Clinical Trial

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Join the PEACHTREE Study.

The PEACHTREE Study is a research study opportunity for patients with non-infectious uveitis who have cystoid macular oedema. If qualified, participants may receive no-cost study-related medication and no-cost medical care from a uveitis specialist.

To learn more or to find a study site near you, visit www.peachtreestudy.com

Find more trial information on ClinicalTrials.gov.

Professor Murray’s Letter of Support for Olivia’s Vision

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Olivia’s Vision was established in 2010 to provide information, support and advice to anyone affected by inflammation within the eye known as uveitis.

The disease can be blinding because the inflammation damages structures inside the eye that are essential for good vision. It is considered a rare disease affecting up to 52 people per 100,000 population in Europe and the USA. For children, the figure is lower with up to 6 per 100,000 population affected. Nevertheless uveitis is the fourth most common cause of blindness in the working age population of the Western world and accounts for 10% of preventable blindness.

The charity is named after Olivia, the now teenaged daughter of the Trustees, Nick and Nick Davis On the Olivia’s Vision website, telling her story, six years on from Olivia’s diagnosis, Nicki writes:

“Olivia was and is the fighting force behind the reason for setting up this charity. Nobody should lose their sight because their doctor doesn’t ‘believe’ in taking an aggressive stance. Nobody should lose their sight because their CCG (Clinical Commissioning Group) won’t fund a particular drug. Nobody should feel they are alone trying to battle a disease nobody has heard of.”

Also on the website, the charity provides information about uveitis, complications, treatment choices, and gives web links to more detailed resources written by health professionals and uveitis specialists. The website forums and social media accounts provide a platform to interact with others and ease the sense of isolation and bewilderment experienced by many. The Helpline and email contact provide a rapid response to questions and worries.

Olivia’s Vision explains medical terminology, gives hope by outlining what can be done to preserve or recover vision, provides contact details of the nearest specialist, helps patients formulate questions so that discussion with their ophthalmologist will be informed and sadly, sometimes puts patients in contact with other organisations which will help when vision has been irreversibly impaired, or they are having trouble maintaining their employment. The Charity’s work extends to the provision of information and support for those enrolled in clinical trials.

Olivia’s Vision also works with NICE and NHS England’s Specialised Ophthalmology Service in order to secure better care and the funding of newer therapies for uveitis patients.During the summer of 2015, Olivia’s Vision fought to reverse a decision made by NHS England in July 2015 to deny new patients sight saving anti-TNF drugs. The charity placed uveitis in the public eye collecting the support of thousands of people through an online petition and arranging for patients and parents to be interviewed by journalists and television news reporters. Nicki and Olivia Davis started the media campaign by giving an interview on Sky News. The campaign was successful in securing Adalimumab for children with severe refractory uveitis. The charity continues to fight to ensure the same success for adults and to have infliximab returned to the treatment options for both adults and children.

Olivia’s Vision funds two Senior Clinical Fellows that rotate 6-monthly between by the Birmingham and Midland Eye Centre (Professor P.I. Murray) and Bristol Eye Hospital (Professor A. Dick) and a Specialist Paediatric Nurse also at Bristol Eye Hospital.

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Professor Phil Murray
MBBS, DO (RCS), PhD, FRCP, FRCS, FRCOphth

Prof. Murray plays saxophone for OV

 |  All News  |  Fundraising

prof_murrayProf Phil Murray, our multi-talented Birmingham uveitis specialist, will be fundraising with the Out of the Blue Big Band on Saturday 19th November at the Thimblemill Library, Smethwick. 

Tickets for this fantastic evening of jazz are available from:
Phil Murray
Academic Unit of Ophthalmology
Birmingham and Midland Eye Centre
Or contact Phil by email.

If you’re unable to attend the gig please support the event by making a donation and don’t forget to mention ‘Out Of The Blue’!

Download the event details and join Phil and the band for an evening to remember…

Thank you.

Marcus, aged just 6, runs for OV!

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marcus_runs_for_ovMarcus raised a wonderful £150 for Olivia’s Vision when he completed the Mini North Run in Gateshead this month.

OV sends huge thanks to our athletic young supporter and his equally athletic Nana, Jeanette, who ran with him.

Thank you, Marcus and Jeanette!

Fantastic BBQ day in support of Olivia’s Vision

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Chris Bennet writes:

Our son, Frayser Bennett, is 6 year old and is suffering from chronic uveitis. He was diagnosed in July, 2015. He is currently under the care of Dr Guly at the Bristol Eye Hospital.

Bennett_3Every visit we make to the hospital, my wife and I are amazed at the level of care and of understanding my son receives from the specialist nurses and Dr Guly.

At one of the most challenging appointments when the full extent of his diagnosis was made clear and at our lowest point, we were given the Olivia’s Vision leaflet. This leaflet, and primarily your excellent website provided great help, support and understanding of the journey we are now on with our son and we are forever grateful.

The Event

Bennett_2With the support of family and friends, my parent’s hosted a full day BBQ (inclusive of food and drinks all day) for an entry donation. We held a raffle and an auction to further contribute towards the charity. It was an amazing day and most people were unaware of uveitis and were interested in understanding what our son is going through.

Olivia’s Vision is immensely grateful to receive this sum from the Bennet family.