Missed Prof. Murray and Out of the Blue Big Band’s November gig?
If you missed the gig on Saturday 19 November 2016 which raised over £600 for Olivia’s Vision. You can listen to the numbers here.
And donate here!
The outstanding Fellowship training provided by Professors Murray and Dick and the hard work of OV Fellowship trainees has resulted in one of our first OV trainees, Efrosini Papagiannuli, being appointed as a uveitis consultant.
Efrosini tells us she is now a consultant in medical retina and uveitis at East Kent Hospitals University Trust. She is looking forward to her new role and building up a local uveitis service serving Ashford, Canterbury and Dover. OV wishes Efrosini every success in her new role and we’re bursting with pride at what she’s achieved so quickly after completing her Fellowship training.
To everyone who has donated to OV and raised funds for us, thank you. This is where your money goes – new uveitis consultants and specialist nurses. Without you, our OV Profs and the commitment of trainees to uveitis patients, we wouldn’t make this difference to uveitis care.
Congratulations, Efrosini! We promise to fill your uveitis clinics!
Prof. Murray and the Out of the Blue Big Band raised over £600 on Saturday November 19th 2016 in aid of Olivia’s Vision.
A huge and enthusiastic audience were treated to 2 great sets by the band and their amazing vocalist, Jan Harris.
Join the PEACHTREE Study.
The PEACHTREE Study is a research study opportunity for patients with non-infectious uveitis who have cystoid macular oedema. If qualified, participants may receive no-cost study-related medication and no-cost medical care from a uveitis specialist.
To learn more or to find a study site near you, visit www.peachtreestudy.com
Find more trial information on ClinicalTrials.gov.
Olivia’s Vision was established in 2010 to provide information, support and advice to anyone affected by inflammation within the eye known as uveitis.
The disease can be blinding because the inflammation damages structures inside the eye that are essential for good vision. It is considered a rare disease affecting up to 52 people per 100,000 population in Europe and the USA. For children, the figure is lower with up to 6 per 100,000 population affected. Nevertheless uveitis is the fourth most common cause of blindness in the working age population of the Western world and accounts for 10% of preventable blindness.
The charity is named after Olivia, the now teenaged daughter of the Trustees, Nick and Nick Davis On the Olivia’s Vision website, telling her story, six years on from Olivia’s diagnosis, Nicki writes:
“Olivia was and is the fighting force behind the reason for setting up this charity. Nobody should lose their sight because their doctor doesn’t ‘believe’ in taking an aggressive stance. Nobody should lose their sight because their CCG (Clinical Commissioning Group) won’t fund a particular drug. Nobody should feel they are alone trying to battle a disease nobody has heard of.”
Also on the website, the charity provides information about uveitis, complications, treatment choices, and gives web links to more detailed resources written by health professionals and uveitis specialists. The website forums and social media accounts provide a platform to interact with others and ease the sense of isolation and bewilderment experienced by many. The Helpline and email contact provide a rapid response to questions and worries.
Olivia’s Vision explains medical terminology, gives hope by outlining what can be done to preserve or recover vision, provides contact details of the nearest specialist, helps patients formulate questions so that discussion with their ophthalmologist will be informed and sadly, sometimes puts patients in contact with other organisations which will help when vision has been irreversibly impaired, or they are having trouble maintaining their employment. The Charity’s work extends to the provision of information and support for those enrolled in clinical trials.
Olivia’s Vision also works with NICE and NHS England’s Specialised Ophthalmology Service in order to secure better care and the funding of newer therapies for uveitis patients.During the summer of 2015, Olivia’s Vision fought to reverse a decision made by NHS England in July 2015 to deny new patients sight saving anti-TNF drugs. The charity placed uveitis in the public eye collecting the support of thousands of people through an online petition and arranging for patients and parents to be interviewed by journalists and television news reporters. Nicki and Olivia Davis started the media campaign by giving an interview on Sky News. The campaign was successful in securing Adalimumab for children with severe refractory uveitis. The charity continues to fight to ensure the same success for adults and to have infliximab returned to the treatment options for both adults and children.
Olivia’s Vision funds two Senior Clinical Fellows that rotate 6-monthly between by the Birmingham and Midland Eye Centre (Professor P.I. Murray) and Bristol Eye Hospital (Professor A. Dick) and a Specialist Paediatric Nurse also at Bristol Eye Hospital.
Professor Phil Murray
MBBS, DO (RCS), PhD, FRCP, FRCS, FRCOphth
Prof Phil Murray, our multi-talented Birmingham uveitis specialist, will be fundraising with the Out of the Blue Big Band on Saturday 19th November at the Thimblemill Library, Smethwick.
Tickets for this fantastic evening of jazz are available from:
Academic Unit of Ophthalmology
Birmingham and Midland Eye Centre
Or contact Phil by email.
If you’re unable to attend the gig please support the event by making a donation and don’t forget to mention ‘Out Of The Blue’!
Download the event details and join Phil and the band for an evening to remember…